top of page
Untitled-1.jpg

Research. Case Reviews.
Shared Knowledge

From peer-reviewed studies to behind-the-scenes insights from our tri-city rounds, this is where BLT shares what we’re learning—and what’s next in pediatric neurovascular care.

Search

Highlights from Virtual Moyamoya Day 2023: Advancing Research, Treatment, and Collaboration

Updated: Aug 29

On Saturday, May 6, 2023, BCH hosted a Virtual Moyamoya Day, bringing together leading experts, researchers, and patient advocates to share the latest developments in imaging, genetics, surgical outcomes, and patient care. The event ran from 11:00 AM – 2:00 PM EST and drew a global audience committed to improving awareness, treatment, and long-term outcomes for patients living with Moyamoya disease.


Opening Remarks


The day began with a warm welcome from Dr. Edward Smith and Dr. Darren Orbach, setting the stage for a collaborative and informative session.



Imaging, Research & Genetics


The first session highlighted major advancements in diagnostic imaging and genetics:

  • Dr. Alfred Pokmeng See presented on the power of 7T imaging, offering unprecedented detail in brain scans.

  • Dr. Jeffry Stout discussed techniques including VSASL, Flow, and CVR for evaluating cerebral blood flow.

  • Dr. Dlamini shared updates on cutting-edge imaging applications.

  • Dr. Srivastava explored the role of genetics in Moyamoya, emphasizing the importance of early detection and family screening.


Surgery, Risks & Outcomes: International Panel


An international panel of surgeons and specialists provided insights into surgical treatment and recovery:

  • Dr. Silva reviewed current surgical approaches.

  • Dr. James addressed potential risks and complications.

  • Dr. Dirks presented on surgical outcomes, emphasizing improved prognoses with timely intervention.


Neurology, Neuropsychology & Patient Experience


Understanding the patient journey was a central theme:

  • Dr. Laura Lehman examined neurological symptoms such as TIAs and headaches.

  • Dr. Mrakotsky highlighted the impact of Moyamoya on neuropsychology and cognitive health.

  • Jen & Christopher offered a patient-centered perspective on follow-up care, covering what happens in the hospital and at home after treatment.


Foundations, Community & Q&A


The event concluded with an open discussion:

  • MMFC (Dr. Lehman) introduced foundations working to support Moyamoya research and families.

  • A 40-minute Q&A session allowed participants to engage directly with experts.

  • The session wrapped up with reflections on next steps in collaboration and research.



Looking Ahead


Moyamoya Day 2023 underscored the importance of international collaboration in advancing rare pediatric neurovascular care. By bringing together experts across imaging, genetics, surgery, and patient support, BLT continues to push forward research, foster awareness, and improve outcomes for families worldwide.


bottom of page